Event News

Upcoming event

Rare Disease Week

This Thursday is Rare Disease Day 2018! Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

2017 International Congress of Porphyrins and Porphyria in Bordeaux, France

The International Conference is a gathering of porphyria experts and researchers from around the world and is held every two years.  This conference provides them with the opportunity to share their research and discuss the present and future therapies, case studies, etc.

This event will take place at the Bordeaux Palais de la Bourse.

Mark your calendars!

The American Porphyria Foundation will be hosting a Patient Education 

Meeting on the beautiful emerald coast in Santa Rosa Beach, Florida on Wednesday, May 10, 2017. You are invited to attend! 

Family and Friends are also welcome to come. See the invite below.


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