Event News
Porphyria Awareness Week 2010
National Porphyria Awareness Week will take place from April 17 through April 24, 2010. Raising awareness means reminding more doctors of the diagnosis and its tell-tale signs; educating friends and family members about the symptoms and treatment for different types of porphyria; and raising funds for porphyria research and education.
Volunteers Needed: Boston, MA
Can you spare a day to help the APF raise physician awareness about the porphyrias, their accurate diagnosis and treatment?
If so, please volunteer with us: come and staff our exhibit booth at the American Association for the Study of Liver Diseases meeting in Boston, MA, October 31 through November 3.
EPP Conference Call: Saturday 7/25/2009
EPP specialists Micheline Mathews-Roth, MD and Joseph Bloomer, MD will discuss Erythropoietic Protoporphyria (EPP) in a national conference call with APF members. Dr. Roth will discuss the disease, its symptoms and current treatment, and Dr. Bloomer will discuss upcoming research on potential new treatment and take your questions. A very special opportunity for EPP patients and their families! Call us toll-free at 1-866-APF-3635 to RSVP and receive call-in instructions.
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