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  1. FDA Posts Video of Mike & Matt To Their Website

    ... Dr . Desnick was also filmed.  He gave an outstanding overview of EPP , as well as a presentation on Afamelotide and the clinical ...

    News - Mar 20 2012 - 8:35pm

  2. Current Research Studies Part 1 of 2

    ... patient packet. The new edition will include: Overview of all porphyrias Panhematin brochure APF Newsletter ...

    News - Aug 20 2014 - 2:49pm

  3. About Porphyria

    ... are listed on the left. To continue reading a general overview of the disease, click here, or read about the different types of ...

    Page - Feb 17 2009 - 4:27pm

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