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... Dr . Desnick was also filmed. He gave an outstanding overview of EPP , as well as a presentation on Afamelotide and the clinical ...
News - Mar 20 2012 - 8:35pm
... are listed on the left. To continue reading a general overview of the disease, click here, or read about the different types of ...
Page - Feb 17 2009 - 4:27pm
... patient packet. The new edition will include: Overview of all porphyrias Panhematin brochure APF Newsletter ...
News - Aug 20 2014 - 2:49pm