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  1. Access to Care Toolkit for the Acute Porphyrias is now available

    ... Toolkit :   http://www.porphyriafoundation.com/content/aip-hcp-vp-access-care-toolkit ...

    News - Mar 22 2017 - 12:47pm

  2. Styling in APF Gear

    ... great entries here:  http://www.porphyriafoundation.org/content/pet-beauty-contest-2016     "Remember....Research ...

    News - May 2 2016 - 11:47am

  3. National Porphyria Awareness Week (NPAW) begins this Saturday, April 16th!

    ... your pet! http://www.porphyriafoundation.org/content/pet-beauty-contest-2016   Louise Schlosser will be ...

    News - Apr 14 2016 - 12:17pm

  4. AIP, HCP, VP Access to Care Toolkit

    ... and experiences in a personally acceptable manner. All content is ultimately the responsibility of the writer.   ... in a personally acceptable manner. All distributed content is ultimately the responsibility of the writer.   ...

    Page - Mar 22 2017 - 12:59pm

  5. 2016 PET BEAUTY CONTEST

    ... they are added! http://www.porphyriafoundation.org/content/pet-beauty-contest-2016   "Remember....Research is the ...

    News - Mar 10 2016 - 9:57am

  6. The 2016 APF Pet Beauty Contest Winners are…

    ... winners and entries:  http://www.porphyriafoundation.org/content/pet-beauty-contest-2016   "Remember....Research is the ...

    News - May 2 2016 - 11:56am

  7. About Porphyria

    ... blister formation. Areas of increased and decreased pigment content may be noted on the skin. Blistering of light exposed skin and ... or other qualified medical professional. The content of the website and databases of the National Organization for Rare ...

    Page - Oct 4 2016 - 11:51am

  8. Basic dietary information

    ... Most people have little knowledge about the nutrient content of foods and the normal requirements for specific nutrients. What ... 4 4 The four food groups differ in nutrient content. Foods within a given group also differ and do not all provide ...

    Page - Apr 19 2013 - 3:05pm

  9. History of Porphyria

    ... classified the porphyrias according to the porphyrin content in the bone marrow and liver.      1955 - A. Goldberg and H. ...

    Page - Apr 11 2015 - 10:54pm

  10. Desiree Lyon

    ... my mortality, I developed an elevation in brain water content called "water intoxication" which also sincerely affected the central ...

    Member Story - Apr 19 2015 - 10:02am

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