Share a story

We invite all of our Sponsors to send us an article for the APF newsletter or for our Sponsor Stories section of our website. Sharing your own experience with porphyria helps others to cope with the disorder more effectively. Such mutual support also gives others with porphyria encouragement that their situation will improve.

If you would like to submit your story for either publication, please submit it below for review.

We also need your written consent to publish your story. Download the Consent Form (PDF), print it, sign it, and mail it to the APF. We look forward to publishing your story as soon as we receive the permission consent form. Please send it to:

American Porphyria Foundation
P.O. Box 22712
Houston, TX 77227

Download Consent Form

Thank you!

The APF is not responsible for the interpretive translations in other languages.

The information contained on the American Porphyria Foundation (APF) Web site or in the APF newsletter is provided for your general information only.

The APF does not give medical advice or engage in the practice of medicine. The APF under no circumstances recommends particular treatments for specific individuals, and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

All information and content on this Web site are protected by copyright. All rights are reserved. Users are prohibited from modifying, copying, distributing, transmitting, displaying, publishing, selling, licensing, creating derivative works, or using any information available on or through the site for commercial or public purposes.

The American Porphyria Foundation (APF) Tax Forms 990 are readily available to the public. If you would like a copy, please contact the APF: 4900 Woodway, Suite 780, Houston, TX 77056. Toll free: 1.866.APF.3635.

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