For Porphyria Awareness......
WATCH ROB SAUPE ON A TV FEATURE
READ ABOUT DESIREE ON iTRIAGE
Watch Rob Saupé on his local station as he promotes porphyria awareness for National Porphyria Awareness Week. Rob also completed a 100 mile hike to raise porphyria awareness and is a Facebook Group Administrator. His volunteer efforts are appreciated by all! Thanks Rob......
The iTriage Medical Education website contacted the APF for this week's message in order to educate their readers about National Porphyria Awarenss Week. They featured Desiree Lyon Howe in their write up about the disease and its symptoms. You can read about it here:
You have the challenge this week and the rest of the year:
To enhance porphyria awareness.
Tip number eight: Send in an article or interesting information that can go on the APF blog.
Remember.........Research is the key to your cure!