Don't Forget to Join the National Porphyria Registry
DON'T FORGET........
JOIN THE NATIONAL PORPHYRIA REGISTRY
Just go to the top line on the home page of the APF website
www.porphyriafoundation.com and click !
Find the "Porphyria Research Consortium" and click!......You will be in a very important place. You will be telling the NIH and the government that we need attention and funds to porphyria. You will also be given the chance to participate in research with one of six porphyria experts and their teams at the following Porphyria Centers:
§ Karl E. Anderson, MD
UTMB Porphyria Center
University of Texas Medical Center, Galveston, Texas
§ D. Montgomery Bissell, MD
UCSF Porphyria Center
University of California at San Francisco
§ Joseph R. Bloomer, MD
UAB Porphyria Center
University of Alabama at Birmingham
§ Herbert L. Bonkovsky, MD
Carolinas Medical Center
Charlotte, North Carolina
§ Robert J. Desnick, PhD, MD
Mount Sinai School of Medicine
New York City, New York
§ John D. Phillips, PhD
Porphyria Center
University of Utah, Salt Lake City
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