News

Click on the bold blue text below or on a topic listed on the left side of the page to read more.

Apr 21, 2018

#SpreadtheWord

We need your click on www.porphyriafoundation.org to #SpreadtheWord and raise funds for the APF!

 

Apr 13, 2018

 

 

Porphyria Awareness Week is ONE WEEK AWAY!

Apr 11, 2018

It is with great sadness we share that Desiree's beloved husband, Dr. Richard James Howe, passed away Monday, March 20. He passed in peace as he lived his life. Please take a moment and read about his life in the Obituary below.

 

Richard James Howe, PhD

Mar 30, 2018

Mar 23, 2018

Porphyria Awareness Week will be held on April 21-28, 2018.

Mar 15, 2018

Porphyria Awareness Week will be held on April 21-28, 2018.

Feb 26, 2018

Feb 16, 2018

IMPORTANT NOTICE!

If you have had problems receiving Panhematin treatment for any reason, please contact Desiree Lyon Howe, APF Executive Director, at lyonapf@aol.com .

Jan 26, 2018

 

Research Participants needed!

Givosiran Trials

Jan 05, 2018

EXCITING ANNOUNCEMENT!!

Jan 01, 2018

The APF is excited for all that is in store for 2018! We will continue with a relentless focus on research, awareness, physician education and member support programs. Stay tuned for information on clinical trials, DNA testing, patient resources, education meetings, programs for kids and so much more.

Dec 22, 2017

 

The American Porphyria Foundation will be closed for the Christmas and New Year holidays beginning Monday, December 25, 2017 and will re-open for normal business hours on Tuesday, January 2, 2018. 

Dec 15, 2017

Dec 13, 2017

We are excited to share with you the new APF Winter Items for sale.

Our hope is that you all will purchase and wear APF merchandise to help raise awareness about Porphyria.

Dec 07, 2017

               

FRESH NEW LOOK...

Nov 29, 2017

Nov 28, 2017

#GivingTuesday 

Nov 21, 2017

The American Porphyria Foundation will be closed on Wednesday, November 22, 2017 in observance of Thanksgiving and will re-open for normal business hours on Monday, November 27, 2017.

Nov 15, 2017

Want your physician to become better educated about your disease? 

Personally invite them to this important symposium!!! 

Nov 07, 2017

PORPHYRIA POST - Important News

 

Upcoming Events and Rearch:

 

PATIENT MEETING - Atlanta, GA

Subscribe to The American Porphyria Foundation: News