News

Click on the bold blue text below or on a topic listed on the left side of the page to read more.

Jan 05, 2018

EXCITING ANNOUNCEMENT!!

Jan 01, 2018

The APF is excited for all that is in store for 2018! We will continue with a relentless focus on research, awareness, physician education and member support programs. Stay tuned for information on clinical trials, DNA testing, patient resources, education meetings, programs for kids and so much more.

Dec 22, 2017

 

The American Porphyria Foundation will be closed for the Christmas and New Year holidays beginning Monday, December 25, 2017 and will re-open for normal business hours on Tuesday, January 2, 2018. 

Dec 15, 2017

Dec 13, 2017

We are excited to share with you the new APF Winter Items for sale.

Our hope is that you all will purchase and wear APF merchandise to help raise awareness about Porphyria.

Dec 07, 2017

               

FRESH NEW LOOK...

Nov 29, 2017

Nov 28, 2017

#GivingTuesday 

Nov 21, 2017

The American Porphyria Foundation will be closed on Wednesday, November 22, 2017 in observance of Thanksgiving and will re-open for normal business hours on Monday, November 27, 2017.

Nov 15, 2017

Want your physician to become better educated about your disease? 

Personally invite them to this important symposium!!! 

Nov 07, 2017

PORPHYRIA POST - Important News

 

Upcoming Events and Rearch:

 

PATIENT MEETING - Atlanta, GA

Oct 25, 2017

INTERESTED IN HOSTING A PATIENT EDUCATION AND SUPPORT MEETING?

Oct 19, 2017

Givosiran Trials

Oct 13, 2017

There are many different ways you can help with research, not just participating in a drug research trial.  Below is one of the very different but equally important ways to make a difference:

Oct 12, 2017

 

PATIENT MEETING - WASHINGTON, DC

 

Oct 11, 2017

Health Professional Radio Interview

Oct 03, 2017

 

2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS:  RECENT ADVANCES  SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!

 

Mark your calendars to join the American Porphyria Foundation and the Genetic Disease Foundation along with expert physicians from around the world!

Sep 29, 2017

Sep 20, 2017

                

 

CLINUVEL PROVIDES UPDATE ON SCENESSE® FDA FILING

 

Sep 01, 2017

The American Porphyria Foundation will resume normal business operations beginning Tuesday, September 6, 2017. We appreciate your thoughts, prayers, patience and understanding during this time. The APF staff remained safe during this storm and will be diligently working to get to your request by responding to your calls and emails.

 

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