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Jan 05, 2018
Jan 01, 2018
The APF is excited for all that is in store for 2018! We will continue with a relentless focus on research, awareness, physician education and member support programs. Stay tuned for information on clinical trials, DNA testing, patient resources, education meetings, programs for kids and so much more.
Dec 22, 2017
The American Porphyria Foundation will be closed for the Christmas and New Year holidays beginning Monday, December 25, 2017 and will re-open for normal business hours on Tuesday, January 2, 2018.
Dec 15, 2017
Dec 13, 2017
We are excited to share with you the new APF Winter Items for sale.
Our hope is that you all will purchase and wear APF merchandise to help raise awareness about Porphyria.
Dec 07, 2017
FRESH NEW LOOK...
Nov 29, 2017
Nov 28, 2017
Nov 21, 2017
The American Porphyria Foundation will be closed on Wednesday, November 22, 2017 in observance of Thanksgiving and will re-open for normal business hours on Monday, November 27, 2017.
Nov 15, 2017
Want your physician to become better educated about your disease?
Personally invite them to this important symposium!!!
Nov 07, 2017
PORPHYRIA POST - Important News
Upcoming Events and Rearch:
PATIENT MEETING - Atlanta, GA
Oct 25, 2017
INTERESTED IN HOSTING A PATIENT EDUCATION AND SUPPORT MEETING?
Oct 19, 2017
Oct 13, 2017
There are many different ways you can help with research, not just participating in a drug research trial. Below is one of the very different but equally important ways to make a difference:
Oct 12, 2017
PATIENT MEETING - WASHINGTON, DC
Oct 11, 2017
Health Professional Radio Interview
Oct 03, 2017
2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS: RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!
Mark your calendars to join the American Porphyria Foundation and the Genetic Disease Foundation along with expert physicians from around the world!
Sep 29, 2017
NICOLE'S CASTELLANO'S RUN FOR PORPHYRIA!
Sep 20, 2017
CLINUVEL PROVIDES UPDATE ON SCENESSE® FDA FILING
Sep 01, 2017
The American Porphyria Foundation will resume normal business operations beginning Tuesday, September 6, 2017. We appreciate your thoughts, prayers, patience and understanding during this time. The APF staff remained safe during this storm and will be diligently working to get to your request by responding to your calls and emails.