Porphyria Awareness Week 2010
National Porphyria Awareness Week will take place from April 17 through April 24, 2010. Raising awareness means reminding more doctors of the diagnosis and its tell-tale signs; educating friends and family members about the symptoms and treatment for different types of porphyria; and raising funds for porphyria research and education.
2010 will be an exciting year for porphyria awareness as the Porphyria Rare Disease Research Consortium begins to build a National Porphyria Registry. We hope all APF members and supporters will find a way to get involved. Read more about National Porphyria Awareness Week and previous years' activities here or call our office at 866-APF-3635 for more information or to volunteer.
