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Jun 04, 2009
The APF sent member and volunteer Judy Phelps to educate doctors about acute porphyria diagnosis at the Digestive Disease Week meeting in Chicago May 31-June 3.
Ovation Pharmaceuticals, Inc., the maker of Panhematin® for acute porphyria, was recently acquired by Lundbeck, Inc., a Danish company with international holdings. Lundbeck, Inc. has assured the APF that Panhematin® will remain on the market and available to patients as ever.
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May 01, 2009
Our dear friends at the Fundación Colombiana Para la Porfiria/Colombian Porphyria Foundation are working to raise awareness of porphyria in their country and have sent the following important request for Monday, May 4:
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Apr 16, 2009
SHOCK TREATMENTS WERE NOT THE ANSWER
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Mar 28, 2009
You’ll get news on research and treatments, features on other patients and families who are dealing with porphyria, and get to know some of the doctors and researchers who are working to expand knowledge of the disease. Read the latest edition here.
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Mar 25, 2009
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Mar 24, 2009
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Mar 20, 2009
