Acute Porphyria in NY Times Tomorrow
APF member Judy Phelps, who suffers from acute porphyria, was interviewed extensively by Dr. Lisa Sanders for the Diagnosis column that appears in the Sunday New York Times magazine section. Dr. Sanders writes in each column about about a different case in which a patient's symptoms puzzled and often alarmed doctors. Naturally, all of the porphyrias make a perfect fit for this type of feature.
The acute porphyria story is available on the newspaper's website through Sunday November 1: http://www.nytimes.com/2009/11/01/magazine/01FOB-diagnosis-t.html?_r=1&ref=magazine&pagewanted=all
Dr. Sanders appeared recently in a segment of The Dr. Oz Show featuring Erythropoietic Protoporphyria and is the author of a new book, Every Patient Tells a Story: Medical Mysteries and the Art of Diagnosis. Read Sunday, November 1, about Judy's ten-year odyssey to a diagnosis, and the surgeries and misdiagnoses she endured along the way.
