EPP Family in TX Newspaper
APF member LeeAnn Cook and her two sons were featured in an article in their hometown newspaper, just in time for National Porphyria Awareness Week. LeeAnn's two sons both suffer from erythropoietic protoporphyria (EPP). Of the community response to the local article, LeeAnn writes:
"Vernon is only about 11,000 people. I grew up here and then moved off to college. My husband and I have been here for 14 years! [After the article was published,] there were tons of people that said, "I had no idea what all your boys had been through." I wanted to get the word out and never really thought about how to do that until I read the newsletter and it suggested it in there. So thanks for the idea! I would love to send you a copy, there was a picture and all with it too!
"Thanks for all you do!"
Thank You LeeAnn, and thank you to all your family, for sharing your story and teaching your community about porphyria.
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