APF Members making a difference.

We want to send a big thank you to our longtime APF member and longstanding volunteer, Amy Chapman….

 

 

Amy Chapman, who has AIP, has been a major force for the APF.  She has been a volunteer Administrator on our APF Facebook support groups since their inception and in that capacity reaches out to each of the 1,000 plus members. Amy has graciously shared her experiences, and knowledge of valuable resources provided by the APF.  Amy also writes the APF Purple Light blog

Amy has shared her AIP story on a video for national media.  You can view Amy’s video on the APF YouTube channel:   PorphyriaFoundation

 

 

 

For this year’s National Porphyria Awareness Week, Amy Purchased items to sale to raise money and awareness for Porphyria.  Many of the items have the APF logo on them and 100% of the profits went to the APF to advance Physician Education.  Orders still can be placed through May 6, 2013. To view these items and learn how to order go to:  Amy's Fundraising Event.

 

Thank you to all of our APF volunteers who did an amazing job of raising porphyria awareness from placing Awareness Week posters on their Facebook pages to hosting Health Fairs and more.  Watch the APF Enews for the next wonderful story about the young Cook brothers and their family efforts to enhance porphyria awareness with their HAT DAY event.

 

Remember…..Research is the key to your cure!

 
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