The American Porphyria Foundation will be closed on Wednesday, November 22, 2017 in observance of Thanksgiving and will re-open for normal business hours on Monday, November 27, 2017.
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Nov 21, 2017
Nov 15, 2017
Want your physician to become better educated about your disease?
Personally invite them to this important symposium!!!
Nov 07, 2017
PORPHYRIA POST - Important News
Upcoming Events and Rearch:
PATIENT MEETING - Atlanta, GA
Oct 25, 2017
INTERESTED IN HOSTING A PATIENT EDUCATION AND SUPPORT MEETING?
Oct 19, 2017
Oct 13, 2017
There are many different ways you can help with research, not just participating in a drug research trial. Below is one of the very different but equally important ways to make a difference:
Oct 12, 2017
PATIENT MEETING - WASHINGTON, DC
Oct 11, 2017
Health Professional Radio Interview
Oct 03, 2017
2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS: RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!
Mark your calendars to join the American Porphyria Foundation and the Genetic Disease Foundation along with expert physicians from around the world!
Sep 29, 2017
NICOLE'S CASTELLANO'S RUN FOR PORPHYRIA!
Sep 20, 2017
CLINUVEL PROVIDES UPDATE ON SCENESSE® FDA FILING
Sep 01, 2017
The American Porphyria Foundation will resume normal business operations beginning Tuesday, September 6, 2017. We appreciate your thoughts, prayers, patience and understanding during this time. The APF staff remained safe during this storm and will be diligently working to get to your request by responding to your calls and emails.
Aug 30, 2017
Aug 28, 2017
The American Porphyria Foundation office will be closed today, Monday, August 28th due to the severe flooding in Houston, TX. You can still reach the APF via email at email@example.com or through individual staff emails. The voicemail will be checked and calls will be returned on a regular basi
Aug 24, 2017
RESEARCH: YOU ARE NEEDED!
We are seeking patients to join our research studies. Get involved today!
Aug 15, 2017
The American Porphyria Foundation will be hosting a Patient Education meeting on Saturday, September 16, 2017 in Anaheim, CA. See the invite below.
Aug 04, 2017
NEW RESEARCH STUDY FOR PORPHYRIA CUTANEA TARDA (PCT)
Jul 27, 2017
APF Membership: Guess what? It's FREE!
Jul 19, 2017
A downloadable Access to Care Toolkit is a resource designed to help patients living with Acute Intermittent Porphyria (AIP), Hereditary Coproporphyria (HCP), and Variegate Porphyria (VP) or their caregivers, loved ones and healthcare providers secure access to Panhematin at their preferred health facility. We have recently learned of patients who are being denied
Jul 12, 2017
Tired of being called a VAMPIRE, CRAZY or a DRUG SEEKER?