FRESH NEW LOOK...
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FRESH NEW LOOK...
The American Porphyria Foundation will be closed on Wednesday, November 22, 2017 in observance of Thanksgiving and will re-open for normal business hours on Monday, November 27, 2017.
Want your physician to become better educated about your disease?
Personally invite them to this important symposium!!!
PORPHYRIA POST - Important News
PATIENT MEETING - Atlanta, GA
INTERESTED IN HOSTING A PATIENT EDUCATION AND SUPPORT MEETING?
There are many different ways you can help with research, not just participating in a drug research trial. Below is one of the very different but equally important ways to make a difference:
PATIENT MEETING - WASHINGTON, DC
2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS: RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!
Mark your calendars to join the American Porphyria Foundation and the Genetic Disease Foundation along with expert physicians from around the world!
NICOLE'S CASTELLANO'S RUN FOR PORPHYRIA!
CLINUVEL PROVIDES UPDATE ON SCENESSE® FDA FILING
The American Porphyria Foundation will resume normal business operations beginning Tuesday, September 6, 2017. We appreciate your thoughts, prayers, patience and understanding during this time. The APF staff remained safe during this storm and will be diligently working to get to your request by responding to your calls and emails.
The American Porphyria Foundation office will be closed today, Monday, August 28th due to the severe flooding in Houston, TX. You can still reach the APF via email at email@example.com or through individual staff emails. The voicemail will be checked and calls will be returned on a regular basi
RESEARCH: YOU ARE NEEDED!
We are seeking patients to join our research studies. Get involved today!
The American Porphyria Foundation will be hosting a Patient Education meeting on Saturday, September 16, 2017 in Anaheim, CA. See the invite below.
NEW RESEARCH STUDY FOR PORPHYRIA CUTANEA TARDA (PCT)