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Join the APF
Click here to get started.
Benefits of Sponsorship
Become partners with an international team of healthcare professionals
and patients committed to improving the health of individuals and
families affected by porphyria.
For US Sponsors, tax-deductable annual dues
are $35.
For international Sponsors, annual dues are
$45.
As an APF Sponsor, you get the
following valuable benefits with your annual Sponsorship:
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Porphyria DVD—Free
with new paid APF Sponsorship
Listen to porphyria
patients share their courageous stories and learn how they
cope with the challenges of living with porphyria.
You'll also meet some of the world's foremost porphyria experts
as they take you inside the laboratories that are working hard
toward a cure.
Available in english only.
Preview
the video here |
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Important Bi Monthly
Email Updates
APF Email Updates provide a quick and convenient way to get
important news regarding the APF and porphyria information. |
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Educational materials
As a Sponsor, you'll get exclusive porphyria educational brochures
that help you learn about the disease, diagnosis, treatment,
and symptom prevention. Each brochure is written and developed
by the APF Advisory
Board, a team of the world's
formost experts on porphyria. Topics include:
porphyria overview; treatment with Panhematin® (hemin for
injection); acute porphyria overview; diet and nutrition;
and many others. |
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In-Touch
Don't miss out on one of the greatest benefits of being an
APF Sponsor!
Please JOIN our In Touch network along with hundreds of
others. This network enables you to meet other Sponsors with
porphyria through email, meetings or other preferred forms
of contact. From there, Sponsors communicate with one another,
share advice, and receive unique peer-to-peer emotional support
not easily found anywhere else. Who knows, someone with porphyria
could be in your hometown.
There is no charge to be in this helpful program if you
are a foundation Sponsor. We only require that you sign a
permission slip authorizing us to release your name and contact
information. Our Sponsors' privacy is of utmost importance
to us. You'll find the consent form in the Sponsorship Information
form under Join. If you already are a Sponsor, please feel
free to complete this permission
slip or
contact us directly, and we'll be happy to provide you with
a copy to sign. Return it to us via fax or mail. Our In Touch
coordinator is Lelia
Brougher,
and she'll be happy to help if you are interested in joining
or even hosting an In Touch meeting.
And remember with In Touch, you're never alone! |
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Newsletter Delivery
As a Sponsor, you'll receive quarterly
newsletters mailed
directly to your door.
Each issue covers the latest news in the world of porphyria,
Sponsor stories, legislation updates, foundation news,
and much more. With the APF newsletter, you're always
in the loop.
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JOIN TODAY!
Unable to pay?
Sometimes Sponsors are unable to pay the yearly $35/$45
Sponsorship donation. If so, your donation can be waived. Simply
mail a signed, written request to the address below. Sorry, email
requests and phone calls will not be considered.
The American Porphyria Foundation
P.O. Box 22712
Houston, Texas 77227
713-266-9617
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The APF is not responsible for the interpretive translations in other languages.
The information contained on the American Porphyria Foundation (APF) Web
site or in the APF newsletter is provided for your general information only.
The APF does not give medical advice or engage in the practice of medicine.
The APF under no circumstances recommends particular treatments for specific
individuals, and in all cases recommends that you consult your physician or
local treatment center before pursuing any course of treatment.
All information and content on this Web site are protected by copyright. All
rights are reserved. Users are prohibited from modifying, copying,
distributing, transmitting, displaying, publishing, selling, licensing,
creating derivative works, or using any information available on or through
the site for commercial or public purposes.
The American Porphyria Foundation (APF) Tax Forms 990 are readily available to the public. If you would like a copy, please contact the APF: 4900 Woodway, Suite 780, Houston, TX 77056. Toll free: 1.866.APF.3635.
© 2007 American Porphyria Foundation.
All Rights Reserved. |
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