Global Partners

Members of the APF live all around the globe. It is our hope that they will soon be able to enjoy the same opportunity to communicate with one another, develop friendships, and learn about porphyria in their own language. Our first Global Partnership has been initiated with our friends in Brazil.

Out of concern for others with porphyria in countries around the world, we hope to place a translation of the For Physician's section of the website in specific languages. This is an enormous important project, which will require your help. It is one means to extend our hand of friendship and understanding to our friends everywhere.

Porphyria Association Inc (Australia)
Brazilian Porphyria Association (Associaçâo Brasileira de Porfiria)
Columbian Porphyria Foundation (La Fundacion Colombiana para la Porfiria)
Germany Porphyria Support Group
Japanese SAKURA Friends
Mexico represented by Susana Isla's patient story (Español/English)

We welcome our members around the world and hope to expand our global friendships and global partnerships. If you would like to participate in the Global Partnership Program or would like information about this new, exciting program of the APF, please contact Desiree at lyonapf@aol.com.

The APF is not responsible for the interpretive translations in other languages.

The information contained on the American Porphyria Foundation (APF) Web site or in the APF newsletter is provided for your general information only.

The APF does not give medical advice or engage in the practice of medicine. The APF under no circumstances recommends particular treatments for specific individuals, and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

All information and content on this Web site are protected by copyright. All rights are reserved. Users are prohibited from modifying, copying, distributing, transmitting, displaying, publishing, selling, licensing, creating derivative works, or using any information available on or through the site for commercial or public purposes.

The American Porphyria Foundation (APF) Tax Forms 990 are readily available to the public. If you would like a copy, please contact the APF: 4900 Woodway, Suite 780, Houston, TX 77056. Toll free: 1.866.APF.3635.

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