Porphyria Book
Desiree Lyon's Porphyria Memoir

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• $15.00 for US residents
• $25.00 for International residents
Free with membership at $100 or greater level.
Porphyria, A Lyon's Share of Trouble, by Desiree Lyon Howe, the APF Executive Director, discusses Desiree's personal accounts of living with porphyria as well as stories of many other patients whom she has helped over the past twenty-five years.
You will gain tremendous insight and guidance from Desiree's experiences as well as important information that can help you navigate the complex world of porphyria.
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