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News
Mar 30, 2018
Easter Office Closure and Pain Project
Mar 23, 2018
Spread the Word!
Mar 15, 2018
Porphyria Awareness Week, and the WINNER IS...., and more!
Feb 26, 2018
Rare Disease Week
date:
Apr 21, 2018
Porphyria Awareness Week 2018
date:
Jan 12, 2018
2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS: RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!
date:
Dec 9, 2017
PATIENT EDUCATION AND SUPPORT MEETING - ATLANTA
Abdul Waheed Butt
Oscar Mannson
Pernilla Mannson
Ryan Taal
Michelle MacMeeken
Rocco Falchetto
Sandra Ihring
Evelyn Jacobucci
Amanda Boston ~ Panhematin Story
Oliver Stanek
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