Events

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News

Jul 06, 2018

Urgent Action Needed

Jun 12, 2018

Givosiran Trials Update and much more

Jun 11, 2018

Poprphyria in the Press PAW 2018

Jun 05, 2018

Opportunity to serve on an Advisory Board

date:

Apr 21, 2018

Porphyria Awareness Week 2018

date:

Jan 12, 2018

2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS: RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!

date:

Dec 9, 2017

PATIENT EDUCATION AND SUPPORT MEETING - ATLANTA

Abdul Waheed Butt

Pernilla Mannson

Ryan Taal

Michelle MacMeeken

Rocco Falchetto

Evelyn Jacobucci

Amanda Boston ~ Panhematin Story

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