Emergency Room Guidelines for Acute Porphyrias

Download ER Guidelines (pdf)

The Emergency Room Guidelines cover basic information an ER physician needs to recognize, diagnose and provide life-saving treatment for an acute porphyria attack.  Guidelines include:

  • Common precipitating factors for the acute attack
  • Typical presentation and other diagnostic clues
  • Making the initial diagnosis
  • Common sequelae 
  • Best practices for treatment

These Guidelines are for Physician Use Only.  The APF sells a separate, personalized Emergency Room and Primary Care Physician Kit that contains all the information acute porphyria patients need to have with them in the Emergency Room (medical journal articles, information about the Rapid PBG Screening Kit for acute porphyrias, other diagnostic labs and Panhematin, room for your own diagnostic test results).

Acute Porphyrias in the ER

An Essential Resource and Teaching Tool

This PowerPoint presentation provides valuable information about acute porphyrias in the emergency room, including case presentation, causes, evaluation, and treatment protocols. It also includes vital information on preparing and administering Panhematin® (hemin for injection).

Download here