The International Porphyria Patient Day, organized by the Swiss Society for Porphyria and the German EPP Patient Group, will be held on Saturday, May 18th, 2013 in Lucerne, Switzerland.
The primary objectives of the Patient Day:
- networking between individual patients, their organizations and the scientific experts in the field of porphyria
- sharing information on the latest research activities and clinical advances
- discussing international collaborations between patient organizations and planning for an international umbrella organization to more effectively protect patients’ well-being and promote their interests
The Swiss Society for Porphyria and the German EPP Patient Group would like to encourage representatives from the various international patient associations and individual porphyria patients to attend the Patient Day. We hope to see many of you there: numerous participants will contribute to making this day an enriching and valuable event for the cause of porphyria patients around the world.
Some scholarship funding will be available, so if you are interested in attending and /or needing a small scholarship, please contact the APF toll free: 1.866.APF.3635
For details, please see:
Remember….. Research is the key to your cure!