Update - Acute Porphyria FDA Meeting March 1st!

Based on the agenda, we will be welcoming live questions at designated points during the meeting via live chat. Please comment/provide your questions in the chat section on the webcast. If you are unable to provide question(s) there, please email your question(s) to Jessica at Jessica@porphyriafoundation.org.


To view the meeting live, we will have a webcast streaming in real time. 

We have attached the link for the PFDD Meeting Agenda for your review. Here is the link: http://www.porphyriafoundation.com/sites/default/files/PFDD-Meeting-Agenda.pdf

If you are planning to speak at the FDA Meeting, please submit your speech to the APF  TODAY to lyonapf@aol.comYou are welcome to say whatever you want, however, we need everyone's story sent in order to know where to place you within the program.


Contact us with any questions!


We can't wait to see everyone!!