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Rose and Colin ~ Living with Porphyria ~ Video
Type of Porphyria:
Acute Intermittent Porphyria (AIP)
Rose and Colin - Living with Porphyria
Aug 15, 2018
Patient Education Meetings and more...
Aug 08, 2018
#ApproveScenesse, Clinical Trials and More...
Aug 01, 2018
Panhematin Study, FOX News Special and More...
Jul 25, 2018
Harvoni Study for PCT and more...
» More recent news
Apr 21, 2018
Porphyria Awareness Week 2018
Jan 12, 2018
2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS: RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!
Dec 9, 2017
PATIENT EDUCATION AND SUPPORT MEETING - ATLANTA
» More upcoming events
Milton Cubas ~ ALAD Porphyria
Mary Schloetter ~ Dna Diagnosis
Megan Parrish ~ How the dog I didn't want became the dog I'd always dreamed of