Research is the KEY!

Harvoni Study - PCT

Do you have PCT? Are you interested in participating in research? Do you have Hepatitis C? If you answered YES to these questions, this is for you.

We need YOU for a clinical trial!

The purpose of this clinical trial is to assess whether Harvoni alone is an effective therapy in active PCT patients with Chronic Hepatitis C.

Who can participate?

Adult patients with PCT who also have Hepatitis C

If you are interested in participating please contact Edrin Williams, Director of Patient Services at the APF office at 301.347.7166 for additional information.

 

EPP Clinical Trials – Participants Needed!

Are you ready to be a medical hero? A new clinical trial with an oral investigational drug intended to reduce phototoxicity in people living with EPP has begun. Don’t delay – contact the APF to learn more at 1-866-APF-3635 or porphyrus@porphyriafoundation.org

"Remember...Research is the key to YOUR cure!"

Each Step Toward Finding an Effective Treatment is Important!

 

Safe/Unsafe Drug Questionnaire for the Acute Porphyrias (AIP,VP,HCP & ADP

The APF is collaborating with researchers to identify new safe and unsafe drugs. We need your help. Are you experiencing adverse effects with any of your new medications? If so, please let us know in the questionnaire below how it affected you. We will share these results with our team of renowned Porphyria experts/researchers. They are in the process of updating our safe and unsafe drug list for the acute porphyrias. Your donations will help us educate physicians about the dangerous effects of unsafe drugs. Please click on the link below for the Questionnaire.

Safe and Unsafe Drug Questionnaire

 

Patient Education and Support Meeting

LOCATION:
Cincinnati Children's Hospital | 3333 Burnett Ave. | 2nd Floor, Section D | Cincinnati, OH 45229

DATE AND TIME::
09/29/18 11:00am - 09/29/18 2:00pm

This meeting will be hosted by Audrey Schering and Brandy Nicole Smith. Please let us know if you will be in attendance!