The following is a list of Television, and Other Media that have featured Porphyria
Books and Papers
- “On Porphyria and the Aetiology of Werewolves” by L. Illis', 1963, paper published in Proceedings of the Royal Society of Medicine January 1964
- The Porphyrias by Geoffrey Dean, 1971
- Vampires by Nancy Garden, 1973
- "Porphyria, Vampires, and Werewolves: The Aetiology of European Metamorphosis Legends", paper by David Dolphin for the American Association for the Advancement of Science, 1985
- Porphyrins and Porphyria by Y. Nordman, 1986
- American Vampires: Fans, Victims, Practitioners by Norine Dresser, 1989
- Porphyria by Tammy Evans, 1997
- Purple Secret: Genes, 'Madness' and the Royal Houses of Europe by John C. G. Rohl, 1999
- Porphyria, A Lyon’s Share of Trouble by Desiree Lyon Howe, 2004
- Royal Maladies: Inherited diseases in the royal houses of Europe by Alan Rushton, 2008
- Ultimate Comics Avengers 3 #1, comic by Mark Millar, October 2010
- "Rare genetic disorder doesn't slow down boys," two brothers in a small Texas town deal with erythropoietic protoporphyria (EPP) from the Vernon Daily Record April 9, 2010. (1, 2, 3)
Magazines and Blogs
Pain News Network
Parade Magazine
- Desiree Lyon Howe Story
- Porphyria, Rare Disease Feature
National Geographic
New York Time Magazine & Blog
- “Perplexing Pain” by Lisa Sanders, MD – October 2009
- “New Explanation Given For van Gogh's Agonies” by Natalie Angier, December 1991
- "Think Like a Doctor: Running in Circles Solved!" by Dr. Lisa Sanders, M.D., April 2014
Movies
- The King’s Speech (2010)
- The Madness of King George (1994) & (2005) - film based on the 1991 Alan Bennett play “The Madness of George III”
- Porphyria (2010)
News Reports
ABC.com
- Rob Saupe’ Interview - “Implant Helps Those With Skin Diseases, and Gives Them a Tan Too”
- Craig Leppert Interview - "Sunlight Allergy 'Like Pouring Hot Wax On Your Skin"
ABC News Specials
- Medical Mysteries Series, Episode 2
- Interview with Desiree Lyon
- "The Mystery Illness" of Congenital Erythropoietic Protoporphyria (CEP) on Dr. Dean Edell's Medical Journal, ABC-TV 1986. (on genebennett.net)
ABC Nightline
- 11-Year-Old Girl 'Allergic' to Sunlight, July 2, 2015
ABC Prime Time
- CEP Segment - Kasey Knauf
- Royal Mystery Unraveled, August 15, 2012
Anderson Cooper 360
- CEP
BBC news
- King George III, Mad or Misunderstood
- “Mad King” Did Porphyria a Disservice
- Interview with Desiree Lyon Howe
CNN
- Documentary - Rare Disease Focus, A Life in the Darkness - Kasey Knauf
- Ten Mystery Diseases You Have Never Heard Of
- Why Elizabeth Won’t Give Up Her Throne
- Interview with Desiree Lyon (CNN HERO)
- Documentary - Too much Iron, PCT CNN
- Weird Science - Diagnosing Dracula
CNN iReport
- Vampires Don’t Exist But Porphyria Does
- Sunlight Allergy July, 2015
Dr. Drew
- Mystery Illness - December 2012
Dr. Oz
- EPP Patient - Craig Leppert
Fox News
- Interview with Desiree Lyon
- Vampires, A Medical Myth, November 2009
- King George, Madness or Arsenic, July 2005
- EPP with Dr. Herbert Bonkovsky July, 2015
Good Morning America
- 11-Year-Old Girl 'Allergic' to Sunlight, Jul 1, 2015
NBC Evening News
- NBC Evening News, Thur. May 31 2005
- Dr. Bruce Spielgaman WBZ, August 2005
- Sunlight Allergy July, 2015
NBCnews.com
Sanjay Gupta
- CEP patient - Kasey Knauf
- Baby's light disorder left doctors in the dark
USA Today
Television Shows
Castle
- Vampire Weekend: Season 2, Episode 6
CSI Las Vegas
- Justice Served: Season 1, Episode 21
- Blood Moon: Season 11, Episode 3
Dateline NBC
- Out of the Shadows, June 14, 2015
Diagnose Me
- Ballerina Interrupted Season 1, Episode 4, May 8, 2015
Doc Martin
- Uneasy Lies the Head: Season 4, Episode 2
Gray’s Anatomy
- Time Warp: Season 6, Episode 15
House
- The Socratic Method: Season 1, Episode 6
- Honeymoon: Season 1, Episode 22
- Fools for Love: Season 3, Episode 5 (mentions porphyria)
- Finding Judas: Season 3, Episode 9
- Don’t Ever Change: Season 4, Episode 12 (mentions porphyria)
- Guardian Angels: Season 4, Episode 4 (mentions porphyria)
- Whatever it Takes: Season 4, Episode 6 (mentions porphyria)
- The Itch: Season 5, Episode 7
- Emancipation: Season 5, Episode 8 (mentions porphyria)
- Let Them Eat Cake: Season 5, Episode 10
- Carrot or Stick: Season 7, Episode 10
- You Must Remember This: Season 7, Episode 12
- Bombshells: Season 7, Episode 15
- Charity Case: Season 8, Episode 3
- Post Mortem: Season 8, Episode 20
Learning Channel
- Porphyria, Another Myth in the Making
Midsomer Murders
- Masterclass: Season 13, Episode 5
Montel Williams
- Porphyria with Lauren Warren
- Rare Diseases with the Leppert Family
Mystery Diagnosis
- The Sickest Patient in the Hospital and Terrifying Tremors: Season 5
- The Boy Who Kept Swelling: Season 6 Episode 6
Mystery ER
- Seeping Through the Cracks/Purple Haze: Season 1, Episode 3
Medical Mysteries
- George III - Mad or Misunderstood, BBC, July 14, 2012
Saving Hope:
- The Great Randall: Season 1, Episode 6
Secret History
- Purple Secret in Search of Royal Madness: Season 6, Episode 6
Scrubs
- My Ocardial Infarction: Season 4, Episode 13
- Kelso’s Last Stand: Season7, Episode 9
- My Dumb Luck: Season 9, Episode 7
- Outta here like Vladimir: Season 8, Episode 4
Telemundo
- Intolerance to the Sun, July 17, 2015
The Night Shift
- Parenthood: Season 2 Episode 9
Travel Channel
- Romania Documentary
X Files
- “3”: Season 2, Episode 7
- Bad Blood: Season 5, Episode 12
Over 100 local television stations have produced stories on individual patients. There have also been a large number of articles on patients in local newspapers.
