Porphyria Live! DVD

 

Prophyria Live!

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Watch and listen to Porphyria patients share their stories and learn how they cope with the challenges of living with Porphyria.

You'll also meet some of the world's foremost Porphyria experts as they take you inside the laboratories that are working hard toward a cure.

Preview of the video:

Full Porphyria Live Video: *If you are already a member and would like to order a physical copy of the Porphyria Live DVD please contact the office Toll free: 1.866.APF.3635

 

 

Video Chapter

Start Time

End Time

Website Page

Major Sections:

 

 

 

PCT

1:54

6:19

http://www.porphyriafoundation.com/about-porphyria/types-of-porphyria/PCT

AIP

6:20

13:37

http://www.porphyriafoundation.com/about-porphyria/types-of-porphyria/AIP

VP

13:38

13:51

http://www.porphyriafoundation.com/about-porphyria/types-of-porphyria/VP

HCP

13:38

13:51

http://www.porphyriafoundation.com/about-porphyria/types-of-porphyria/HCP

EPP

14:34

21:03

http://www.porphyriafoundation.com/about-porphyria/types-of-porphyria/EPP

DNA Testing

22:14

27:09

http://www.porphyriafoundation.com/testing-and-treatment/testing-for-porphyria/dna-testing-for-porphyria

 

 

 

 

Minor Sections:

 

 

 

APF Website

26:51

28:23

http://www.porphyriafoundation.com/about-the-apf

What is Porphyria?

1:24

1:53

http://www.porphyriafoundation.com/about-porphyria

Do you have porphyria?

21:04

22:13

http://www.porphyriafoundation.com/testing-for-porphyria

Screening

14:10

14:34

http://www.porphyriafoundation.com/testing-and-treatment/testing-for-porphyria/screening

Panhematin

12:59

13:38

http://www.porphyriafoundation.com/testing-and-treatment/medications-for-porphyria/panhematin

Beta Carotene

18:32

19:42

http://www.porphyriafoundation.com/content/lumitene-epp