Porphyria Awareness Week is just a click away!


We need your click on www.porphyriafoundation.org to #SpreadtheWord and raise funds for the APF!


Recordati Rare Diseases Inc. will donate $1 (up to $5,000) to The American Porphyria Foundation every time someone clicks on website under “Click to trigger a $1 donation”. Please go to porphyriafoundation.org, find this guy and click to donate. Then spread the word to others to do the same!

*Do not click here – go to porphyriafoundation.org


Porphyria Awareness Week Resources

While you are on the website, head to http://www.porphyriafoundation.com/content/porphyria-awareness-week-2018

for additional APF resources to support you in your awareness efforts. Need something that isn’t on there? Just ask and we’ll be happy to create items that will help you in your awareness goals. We are here to support you.


#PAW2018 Social Media             

We will be posting throughout the week long with awareness week information focusing on each type of porphyria – testimonials, fact sheets, trivia, blogs, and pictures. Check out Facebook, Twitter, Instagram and our Purple Light Blog all week long.

(HINT! You can add the Porphyria Awareness Week banner to your profile image and spread awareness instantly)