Poprphyria in the Press PAW 2018

Dr. Bruce Wang (Porphyria Expert, UCSF) and Mary Schloetter (AIP) completed seventeen back-to-back interviews with a variety of media outlets during a satellite media tour early morning during Porphyria Awareness Week, which was arranged by Alnylam Pharmaceuticals. Their interview series focused on the burden of living with an acute hepatic porphyria and the enormous need for physician awareness.

The combination of an expert physician and a passionate patient advocate was effective as all seventeen interviews were picked up and distributed by local news outlets.

All videos and radio programs are embedded below.

Below the videos is a full list of all the interviews Dr. Wang and Mary did for PAW 2018.

 

A compiled playlist of Video Interviews

 
 

KTVX-TV Good Morning Utah

The signs and symptoms of a rare debilitating disease

 

 

California Life HD/TV

Porphyria Awareness

 
 

Health Professional Radio

How to Care for Patients with Acute Hepatic Porphyrias (AHPs) and the Latest Developments

 

 

Market
Station
Program
AirDate
 
 
Estimated reach Audience
Link
National TV airings
National
Daily Flash TV
Daily Flash
4/27/18
2,200,000
National
Discovery Life
The Rose Lee Archer Show
5/4/18
1,800,000
National
Audrey Adams – TV & Radio
Talk with Audrey
5/11/18
12,910,460 (TV); 1,600,000 (radio)
Regional/Local TV
Philadelphia, PA
WPHL-TV
Eye Opener
5/1/17
12,841
Alabama/Huntsville, AL (statewide)
WYAM-TV
Valley Happenings with Suzie Wiley
5/1/18
204,000
Salt Lake City, UT
KTVX-TV
Good Morning Utah
5/3/18
14,500 (TV); 
156,338 (online)
California (statewide)
California Life HD/TV
California Life HD
5/5/18
80,000
Roanoke, VA
WSET-TV
Living in the Heart of Virginia
5/4/18
20,404
National Radio
National
Health Professional Radio
 
5/2/18
425,000 (radio); 411,685 (online);
1,130 ( Twitter)
National
The Kristen Hagopian Show
The Kristen Hagopian Show
5/2/18
1,396,000
To be posted soon
National
USA Radio Network
John Clemens Report
5/7/18
3,300,000
To be posted soon
Local Radio
Fresno, CA
KMJ-AM
Ag Report and News
4/24/18 (in news); 
4/25/18 (in Ag Report)
306,000
To be posted soon
Seattle, WA
KORE-FM
KORE Commute
5/3/18
44,000
To be posted soon
Los Angeles, CA
KVTA-AM
The Kim Pagano Show
4/28/18
33,400
To be posted soon
Web Postings
National
eMax Health/Web
 
4/27/18
199,408
National
Rare Disease Report
 
5/7/18
31,565;
12,700 ( Twitter)
 
Total Estimated Audience: 25,159,431