Dr. Bruce Wang (Porphyria Expert, UCSF) and Mary Schloetter (AIP) completed seventeen back-to-back interviews with a variety of media outlets during a satellite media tour early morning during Porphyria Awareness Week, which was arranged by Alnylam Pharmaceuticals. Their interview series focused on the burden of living with an acute hepatic porphyria and the enormous need for physician awareness.
The combination of an expert physician and a passionate patient advocate was effective as all seventeen interviews were picked up and distributed by local news outlets.
All videos and radio programs are embedded below.
Below the videos is a full list of all the interviews Dr. Wang and Mary did for PAW 2018.
A compiled playlist of Video Interviews
KTVX-TV Good Morning Utah
The signs and symptoms of a rare debilitating disease
California Life HD/TV
Health Professional Radio
How to Care for Patients with Acute Hepatic Porphyrias (AHPs) and the Latest Developments
Market Station Program AirDate Estimated reach Audience Link National TV airings National Daily Flash TV Daily Flash 4/27/18 2,200,000 National Discovery Life The Rose Lee Archer Show 5/4/18 1,800,000 National Audrey Adams – TV & Radio Talk with Audrey 5/11/18 12,910,460 (TV); 1,600,000 (radio) Regional/Local TV Philadelphia, PA WPHL-TV Eye Opener 5/1/17 12,841 Alabama/Huntsville, AL (statewide) WYAM-TV Valley Happenings with Suzie Wiley 5/1/18 204,000 Salt Lake City, UT KTVX-TV Good Morning Utah 5/3/18 14,500 (TV);
California (statewide) California Life HD/TV California Life HD 5/5/18 80,000 Roanoke, VA WSET-TV Living in the Heart of Virginia 5/4/18 20,404 National Radio National Health Professional Radio 5/2/18 425,000 (radio); 411,685 (online);1,130 ( Twitter) National The Kristen Hagopian Show The Kristen Hagopian Show 5/2/18 1,396,000 To be posted soon National USA Radio Network John Clemens Report 5/7/18 3,300,000 To be posted soon Local Radio Fresno, CA KMJ-AM Ag Report and News 4/24/18 (in news);
4/25/18 (in Ag Report)
306,000 To be posted soon Seattle, WA KORE-FM KORE Commute 5/3/18 44,000 To be posted soon Los Angeles, CA KVTA-AM The Kim Pagano Show 4/28/18 33,400 To be posted soon Web Postings National eMax Health/Web 4/27/18 199,408 National Rare Disease Report 5/7/18 31,565;12,700 ( Twitter) Total Estimated Audience: 25,159,431