The American Porphyria Foundation will be hosting a Patient Education meeting on Wednesday, May 10, 2017 in Santa Rosa Beach, FL. See the invite below.
*Note: To those of you attending, there is limited parking on Mist Flower Lane. Please park on High Street.*
Call the APF TODAY to RSVP! We are looking forward to seeing you there.
The APF has partnered with the Mighty to focus on those living with serious health conditions. The Mighty publishes real stories about real people facing real challenges. They are dedicated to helping people with porphyria in their lives. We hope to feature more stories soon. Please stay tuned for more information.
See Shawn Willis' story here: https://themighty.com/2017/04/erythropoietic-protoporphyria-wetsuit-hat/
"Remember....Research is the key to your cure!"