It's National Porphyria Awareness Week!
We have been getting more submissions on what people are doing to RAISE
PORPHYRIA AWARENESS!
Monica Fleegel wearing APF gear in support of NPAW!
Patti Degroot wearing APF gear in support of NPAW!
Thanks to the Cook Family, the APF Team is wearing the Shadow Race T-Shirts in support of awareness week activities. Pictured from left to right; (Jessica, Edrin,Yvette and Lucy).
WOW! Thank you all for your continuing support in our National Porphyria Awareness Week efforts. Share more of your efforts with us TODAY!
Think about what you can do to heighten awareness! It's not too late!
National Porphyria Awareness Week provides each of YOU with the opportunity to enhance porphyria awareness in your local and medical communities.
The APF can help you accomplish this goal by providing materials:
- Porphyria Brochures
- A Porphyria Live DVD
- Fact sheets
- A PowerPoint Presentation
- Information for Grand Rounds
- Ideas to set up Medical Seminars
- Ideas to exhibit at a Health Fair
- Information to gain press
- Doctor packets sent to your doctors
- Press Releases
Contact the APF today at 1.866.APF.3635 or 713.266.9617
"Remember....Research is the key to your cure!"
