Mark your calendars

 

PATIENT MEETING - WASHINGTON, DC

 

Members in the Washington, DC area are invited to attend a Patient Education and Support Meeting at the home of Kristen Wheeden, the APF Director of Development in Bethesda, MD.  There will be a presentation and question/answer session with an on-site Porphyria expert.  Come meet old and new friends who share your experiences with Porphyria. Please RSVP to Edrin Williams in the APF office at 1.866.APF.3635 or edrinw@porphyriafoundation.org. We look forward to seeing you!

 

 

VOLUNTEERS NEEDED FOR THE AMERICAN SOCIETY OF HEMATOLOGY CONVENTION IN ATLANTA!

 

The American Porphyria Foundation will host an exhibit at the 59th ASH Annual Meeting and Exposition. The meeting is located in Atlanta, GA from December 9-12, 2017.  We are looking for volunteers to help host the exhibit - it will be prepared with furniture and educational materials.  Volunteers will need to represent the APF - and will be prepped in advance. Please contact Edrin at the APF office if you live in the area and are willing to help support us at this event. APF Office: 1-866-APF-3635

 

2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS:  RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!

 

Mark your calendars to join the American Porphyria Foundation and the Genetic Disease Foundation along with expert physicians from around the world!

January 12-14, 2018

Click on the link below to view the agenda and register for Clinical Day for Patients. We look forward to seeing you there. If you have any additional questions, please contact the APF at 1.866APF.3635.

www.porphyriassymposium.com

 

"Remember....Research is the key to your cure!"