It's FREE to click!

We need more clicks!!!

Every single dollar earned through this campaign benefits Porphyria!!

Go to the APF website and find the man with the megaphone. You’ll see where to click to trigger a $1 donation.


Then share with your network!



Wear purple on Friday! 

Sport your APF/purple attire on Friday in support of Porphyria Awareness. Take a photo and send it to Edrin at the APF and we’ll share it on our social media outlets.

Edrin -

 #PorphyriaStrong #SpreadTheWord


National Porphyria Awareness Week provides each of YOU with the opportunity to enhance porphyria awareness in your local and medical communities. 

What do you have planned?

Share your story with us! What do you have planned this year to spread porphyria awareness?


Educating your healthcare providers?

Documenting your story to share with the APF?

Contacting your Congressmen?

Sharing your story with local media.

Let us know!



Porphyria Awareness Week Resources  

While you are on the website, head to

for additional APF resources to support you in your awareness efforts. Need something that isn’t on there? Just ask and we’ll be happy to create items that will help you in your awareness goals. We are here to support you.