Introducing Shadow Jumpers


A new program supported by the American Porphyria Foundation for children living with Erythropoietic Protoporphyria (EPP)


We invite you to visit

Inside you will find tips and tricks on living with EPP, learn from fellow EPPers, read EPP Kid's stories, see new apparel and a very special opportunity with LIGHT THE MOMENT 2018!

We even have a mascot!

We welcome all new tips, stories and ideas. Please send to:


For comprehensive information on Erythropoietic Protoporhyria (EPP), please visit the American Porphyria Foundation website:​