Introducing Shadow Jumpers

INTRODUCING

A new program supported by the American Porphyria Foundation for children living with Erythropoietic Protoporphyria (EPP)

 

We invite you to visit

 http://www.porphyriafoundation.com/content/Shadow-Jumpers

Inside you will find tips and tricks on living with EPP, learn from fellow EPPers, read EPP Kid's stories, see new apparel and a very special opportunity with LIGHT THE MOMENT 2018!

We even have a mascot!

We welcome all new tips, stories and ideas. Please send to:

shadowjumpers@porphyriafoundation.org

 

For comprehensive information on Erythropoietic Protoporhyria (EPP), please visit the American Porphyria Foundation website: http://www.porphyriafoundation.com/about-porphyria/types-of-porphyria/EPP-and-XLP​