FIGHT THE STIGMA! CAMPAIGN

Tired of being called a VAMPIRE, CRAZY or a DRUG SEEKER?

 

 

The perception of patients with porphyria won't change unless we make the change.  In order to combat these issues we have to work together to make a difference in each other's lives to eliminate the stigma associated with this disease. 

This campaign will help us create hope for all, help us share our stories more and eliminate the stigma associated with porphyria.

YOU have a VOICE.  Let it be HEARD! We are #PorphyriaStrong

Your participation is needed in order for change to be made.  The steps are listed below to participate.

EDUCATION is KEY!

 

  

"Remember....Research is the key to your cure!"