EPP Meeting at FDA Scheduled for October 24th

The APF will be traveling to the Washington, D.C. area for an important EPP meeting with the FDA!  The FDA is hosting this meeting, so we MUST show them the extreme need for treatment.  The FDA will be observing how many people are interested, so we need as many people as possible to attend.

Date:            Monday, October 24th, 2016

Time:           10 am - 4 pm

Location:     FDA White Oak Campus

                      10903 New Hampshire Ave.

                      Building 31, Great Room

                      Silver Spring, MD 20993

Register here: https://eppscientificworkshop.eventbrite.com

*After you register, you will receive a confirmation email from the FDA with various questions to answer.*

Once you have registered online, please let the APF know you will be attending.  We will be hosting a group gathering the evening before the meeting at a nearby hotel (location to be determined).  You may call the office at 866-APF-3635 or email us at porphyrus@porphyriafoundation.com to RSVP.

*Please note that if you are unable to attend in person, there is an option for you to attend via webcast.*


"Remember....Research is the key to your cure!"

Oct 24 2016 - 10:00am