Cutaneous Porphyria Videos


Cutaneous Porphyria Videos for EPP, CEP, PCT


Life with erythropoietic protoporphyria
Two patients describe their lives with epp. english subtitles!!!!!!



Porphyria Awareness Week 2018 ~ Shadow Jumpers
Meet Jenna! Jenna lives with Erythropoietic Protoporphyria (EPP).


Porphyria - Katy's Choice, CEP





Dougie Spence ~ National Porphyria Awareness Week #1





Porphyria J ~ Porphyria Awareness Week 2017

"Seek Shade and Stay Happy!"





Porphyria J ~ Summer Shade 2016 (Full Season)

"Seek Shade and Stay Happy!"





Porphyria J ~ Summer Shade 2017 (Full Season)

"Seek Shade and Stay Happy!"





Congenital light disease EPP - treatment now!

Our European friends have created a small video to raise awareness about EPP and Scenesse.






NBC Dateline: Out of the Shadows ~ EPP






News Channel 5 Network: Drug Helping Patients With EPP





ABC News: 11-Year-Old Girl 'Allergic' to Sunlight ~ (EPP)






Rare genetic disorder forces woman to stay inside

Elyse Adams of Richmond has a condition called EPP