Find an Expert

 

The APF maintains a list of  Porphyria Experts, who are either experts or they are training with a Porphyria Expert in the Protect the Future program to train future experts.  The following list has been created to assist porphyria patients in locating Porphyria Experts nearest to their area.  Please note that the list is updated frequently, so check it often or contact the APF for additional physicians.  

To use the list, first locate a city nearest you.   For the doctor's name and contact information in your area, call the APF Toll Free: 1.866.APF.3635.

 


 

  • A city with two stars ** denotes a Porphyria Expert is in the city.
  • A city with one star * denotes a doctor that has trained with a porphyria expert and is in the PTF program.

 

 

 

ALABAMA

Birmingham,  AL  35294

            1 - **

            2 - *

Montgomery,  AL 36106

             1 - **

 

ARIZONA

Phoenix,  AZ  85003

           1 - *

 

CALIFORNIA

San Francisco, CA  94143

            2 - **

            2 - *

Los Angeles, CA  90095

            1 - *

FLORIDA

Miami, FL  33136

             1 - *   

 

ILLINOIS

Chicago, IL  60612

            2 - *

 

KENTUCKY

Lexington,  KY  40536

          1 - **

 

MASSACHUSETTS

Boston,  MA  02115

          1 - *

 

 

MISSOURI

Kansas City, MO  64131

            1 - *

 

NEW YORK

Buffalo,  NY  14263

            1 - *

New York, NY 10029

             2 - **

             2 - *

NORTH CAROLINA

Huntersville,  NC 28078

            1 - *

Matthews,  NC 28105

            1 - *

Winston - Salem,  NC 27157

             1 - **

 

NORTH DAKOTA

Fargo, ND  58102 

             1 - *

 

OHIO

Independence OH 44131

            1 - * 

 

PENNSYLVANIA

Philadelphia,  PA  19107

             1 - **

Pittsburgh,  PA 15213

            1 - *

 

TEXAS

Galveston, TX  77555-1109 **

            1 - **

            4 - *

Houston, TX  77030

            2 - *

UTAH

Salt Lake City,  UT  84132

            1 - **

            1 - *

 

VERMONT

Burlington,  VT  05401

             1 - **

 

WASHINGTON

Seattle, WA  98109

              1 - *