2018 HEME BIOSYNTHESIS AND THE PORPHYRIAS: RECENT ADVANCES SCIENTIFIC CONFERENCE and CLINICAL DAY FOR PATIENTS!

Mark your calendars to join the American Porphyria Foundation and the Genetic Disease Foundation along with expert physicians from around the world!

January 12-14, 2018

 

Click on the link below to view the agenda and register for Clinical Day for Patients. We look forward to seeing you there. If you have any additional questions, please contact the APF at 1.866APF.3635.

www.porphyriassymposium.com

 

Clinical Day for Patients Agenda:

Saturday January 13, 2018

Patient Day

10:00 am

Welcome– D. Lyon-Howe, American Porphyria Foundation

10:05 am

American Porphyria Foundation Overview

Session 1- Heme Biosynthesis & the Erythropoietic Porphyrias

Co-Chairs: E. Minder, MD & S. Keel, MD

10:15 am

Heme Biosynthesis and the Porphyrias 101J.D. Phillips, PhD

10:45 am

Genetics 101H. Naik, MS, CGC

11:00 am

Erythropoietic Porphyrias Overview– M. Balwani, MD, MS

11:30 am

EPP Research– J. Marcero

11:45 am

Effective & Emerging Therapies for the Treatment of Erythropoietic Porphyrias– E. Minder, MD, MS

12:15 pm

Q & A moderated by Co-Chairs

12:45 pm

Lunch

Session 2- the Acute Hepatic Porphyrias

Co-Chairs: D.M. Bissell, MD & C. Levy, MD

1:45 pm

Diagnosis of the Porphyrias– M. Badminton, MBChB, PhD

2:15 pm

Acute Hepatic Porphyrias Overview– D.M. Bissell, MD

2:45 pm

Caregivers and Support– Sandra Boone

2:45 pm

Current & Emerging Treatments– B. Wang, MD

3:30 pm

Research Overview and Patient PerspectiveTBD and Sharon Dill, Patient Representative

3:45 pm

Q & A moderated by Co-Chairs

4:30 pm

Closing remarksAmerican Porphyria Foundation

 

 

date: 
Jan 12 2018 - 7:00am to Jan 14 2018 - 5:00pm