Camp Discovery offers a wonderful summer camping experience for young people with skin disorders like porphyria.
Every year, the American Academy of Dermatology sponsors a week of fishing, boating, swimming, water skiing, arts and crafts, and just plain fun.
Under the expert care of dermatologists and nurses, Camp Discovery offers the opportunity of spending a week among other young people who have similar skin conditions. Many of the counselors have serious skin conditions as well, and can provide support and advice to campers.
Fun, friendship, and independence are on the top of everyone's agenda. And, everyone shares in the discovery of what it's like to be included.
There is no fee for camp. Full scholarships, including transportation, are provided by the American Academy of Dermatology through generous donations of their Sponsors and other organizations. Sponsors of the Academy are asked to recommend candidates for Camp Discovery.
You might want to ask your dermatologist about the camp and suggest that he/she recommend your child.
Disneyland and Disney World for EPP Kids
Disneyland and Disney World are responsive to people with sun sensitivity. They will provide a pass to enable you to enter attractions without waiting in line in the sun.
Go to "City Hall" and explain your problem of photosensitivity. You should bring a physician's letter with you as well as an APF brochure explaining the cutaneous disorder.
Proceed to the "Guest Relations" office at any of their parks (Magic Kingdom, EPCOT, etc.) and request the Special Assistance Pass.
remember to bring the aforementioned documentation because your disability is not necessarily visible. People on duty may not be familiar with light sensitivity and its consequences.