About Us

The APF is dedicated to improving the health and well-being of individuals and families affected by porphyria. Our mission is to:

Enhance public awareness about porphyria
Develop educational programs and distributing educational material for patients and physicians
Support research to improve treatment and ultimately lead to a cure

The APF also serves as an advocate on your behalf to other public, private, and government agencies interested in funding research and educational programs.

Our Advisory Board is made up of the world's foremost experts in porphyria management, diagnosis, and research. They have written or approved the medical information on this website.

If you'd like to join, click here.

If you need any further information please contact us at:

The American Porphyria Foundation
P.O. Box 22712
Houston, Texas 77227
Telephone: 713-266-9617
Fax: 713-840-9552
eMail: porphyrus@aol.com

We're sorry, but we can not answer medical questions via eMail.

The APF is not responsible for the interpretive translations in other languages.

The information contained on the American Porphyria Foundation (APF) Web site or in the APF newsletter is provided for your general information only.

The APF does not give medical advice or engage in the practice of medicine. The APF under no circumstances recommends particular treatments for specific individuals, and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

All information and content on this Web site are protected by copyright. All rights are reserved. Users are prohibited from modifying, copying, distributing, transmitting, displaying, publishing, selling, licensing, creating derivative works, or using any information available on or through the site for commercial or public purposes.

The American Porphyria Foundation (APF) Tax Forms 990 are readily available to the public. If you would like a copy, please contact the APF: 4900 Woodway, Suite 780, Houston, TX 77056. Toll free: 1.866.APF.3635.

Join the APF—Your donations help support patient and physician education as well as porphyria research. Learn more...