Porphyria experts maintain this database to help your doctor prescribe drugs that are considered safe in acute Porphyria, and avoid those that may be dangerous. Search APF Drug Database here.

When you join the APF, you become partners with an international team of healthcare professionals and members committed to improving the health of individuals and families affected by Porphyria. For a nominal fee, you'll receive many valuable benefits of membership including a DVD on Porphyria, e-mail updates, educational materials, APF newsletter delivery, and exclusive In Touch access.

Because Porphyria is so rare, many newly diagnosed patients have never even heard of the condition before, let alone met someone else who suffers from it. We post some of our members' stories on this website to help readers connect a name and a life story with the disease. Read member stories here.

Add your name to the growing National Porphyria Registry and be counted in the Porphyria patient population. Having an accurate count of Porphyria patients in the United States is essential for attracting funding and research attention to our cause.  The registry is anonymous and is not connected with APF membership.

If you have questions about Porphyria, available resources, reimbursement issues, our In Touch program, or Porphyria specialists, call the APF toll free at 1-866-APF-3635.